Saturday, January 21, 2017

Going with the flow...

Day Two of clean eating. Today I did yoga! This is rather a big deal, because the last time I tried yoga I had to stop. I had been totally devastated by my bodies inability to move like it used to. I have avoided doing yoga because of that.  Today, I found that while I am definitely still limited it is not nearly as difficult as before. Or, I should say that it is still quite difficult, but perhaps it's not as emotionally charged as it was before.

Anyway, because of all of the 'clean eating', I started it off with a headache, but determined to get a few things done today.  I started to storm ahead and get stuff done (as I usually do), but today my son asked me to go for a visit to the neighbors with my husband while they delivered home made bird feeders.

Looking at my son & husband I decided to drop what I was 'doing' and join them in the adventure.  I am certain I made the best decision, and was treated to some good quality time.  We ventured through our neighbors land and had tea with them.  It was a treat to be a part of it. 

I did find that all of the walking absolutely tired me out, as I've been recovering from an infection,  and taking antibiotics.  I am right now sitting with a neck brace on, as the muscles in my neck are too 'tired' to hold my head up. 

I've spent the last couple of hours playing on the computer with my son, attempting to get to 'his level' and see what he finds funny, what he enjoys.  We watched a bunch of Weird Al Yankovich videos, and he quite enjoys the Trump parody videos on YouTube.  He's such a funny kid, with a great sense of humor.

Even though I didn't get as much 'cleaning' done today, I have allowed my body to relax & rest.   I'm working on 'allowing' for more days like this.

Wednesday, January 18, 2017

Just Write already

I have been experiencing Dermatomyositis symptoms again since September 2016.

Life has been busy, and I have been run down and sick since the middle of December.  In Mexico I obtained some antibiotics for a throat and ear infection. I thought I had it beat, until  I had a Rituxan treatment at the U of A in Edmonton last week.  Since then I have had a fever, headache, sore throat, and can't seem to stop sleeping since. I went to the walk in clinic on Monday and was tested for influenza, had blood cultures taken, chest x-rays.  Everything came back normal, except my white blood count is high.  So they've put me on an antibiotic.. again.

I think the chemotherapy suppressed my immune system and has allowed for the infection in my body to run rampant.

My family doctor recommended that I miss my weekly Methotrexate dosage until I get this infection under control, and she suggested that I also consider not doing my second Rituxan treatment.  I put a call into my Rhumatologist, and he had an interesting perspective.

He said, "I don't think it makes a difference one way or the other.  I'll leave the decision to you, if you're sick and feverish, postpone the chemo." 

I've been dealing with feeling quite awful, and I'm ready to take steps to feeling better.